KpacoTa CnaceT Mup-Beauty Will Save the World

(Quote from Fyodor M. Dostoyevsky's THE IDIOT, 1869)


Monday, November 30, 2009

Hubby Update

Seizures have stopped, chest is clear, no other blood clots, and he is responding to us especially. We think that he sees out of his right eye, we don't know by how much. He moves his legs a lot, including his right side, which is the area of contention. The kids gave him a good work out today...questions, massages, hand squeezes...#1 said," Dad, Mom is here, say hello". He moved his left foot. I was standing by the end of the bed, closest to his left foot. His sister came in at lunchtime and said, "Well,I already put in a half day's work," he smiled. He opened his eyes,saw his Mom , and he smiled. He smiled for the kids and squeezed their hands. Some of his responses are delayed as things get rerouted in his brain.It is difficult for him to open his eyes.It is difficult to do evrything. And he does not like getting his throat suctioned out. Would you???

Basically, they tired him out- blood pressure went up a little from the workout. But, he didn't respond to the respiratory therapist. I think that he was tired out from the kids.So , there was a good improvement from the am.. And in the am there was a good improvement from yesterday. Neurologist said things will take longer because of the whole brain radiation that he had after the brain surgery.

His oncologist said that after 1-2 days off the respirator(which he is barely on, as he is breathing on his own- it is just there for a little umph), and responding and awake to the medical staff, then they will talk therapy. That is when he will be moved to another facility.

We are much more hopeful, but know that there is far to go. This state for a long time would not please my husband. And he is so very weak. But, someone said that he was already a miracle with all that is stacked up against him w/stage 4 cancer, and the kidney problem. But , then- he is an athlete.

It is all overwhelming, especially when I think of our drastically changed financial situation, and all the paperwork and other work that must be done, on top of finding money for the bills, and a better f/t work. Then, of course, he will need care and help, if all goes well. We are praying hard 24/7. He has many people praying for him-even those who do not normally pray, or even talk in those terms.

Sorry that I cannot access pictures, as I am on my sister-in-law's laptop.We have a very nice one of him from Thanksgiving Day.

Thank you to all of you, for your warm and generous thoughts, prayers,emails and love. I hope that this update helps especially those in the family who are separated by the miles.

Love you all. xo Lydia

ps- We play Leo Kotke's music from my daughter's playlist on her laptop all day and night for him. He is Leo's absolutely , biggest fan, ever since he was a teenager . He could listen to him uninterruptedly.

5 comments:

Deborah said...

I am praying for Ken, you and all of your family. Biggest hug, Deborah

Brenda said...

I have stopped in from a day in the life to let you know I have added your husband to my prayer list.

Patti said...

I am still praying and so happy to hear that you can see a small improvement. Bless his heart.
Hugs sweetie
hang in there God is with you and Ken and your children.
Hugs
Patti

Sandy Mastroni said...

Still here Lydia .... thinking of you .... praising God

Virginia bed and breakfast said...

It feels like a weight has been lifted huh? I know exactly what you are taking about. I am so glad you were able to have a discussion with your guy. Have a great day!!